Showing posts with label feeding tube. Show all posts
Showing posts with label feeding tube. Show all posts

Thursday, September 15, 2011

Crazy Days...

Well, this week has been a rough one, but these past two days...wow…intense! I don't know what's going on but, I have been more intense pain in my stomach and in my liver/rib area with the pain level close to 6/7, then at times going higher. Then on top of the fun pain, I have its friend nausea. I like to think of nausea as pains "school yard bully", it likes to come by way of more force with more intensity to slam ones opponent to ground like a bully would do! Yes, I have nausea 24/7 and it does come in waves of bad to worse...but these past couple of days I haven't been able to keep food down! That was with my anti-nausea medicine...now I can't even keep any pills down...
Yesterday, I came VERY close to going to the ER...I do not have insurance so that would be an easy $1000 for one visit and that's if they just kept me for a couple hours...what is a girl to do? But, I will tell you this if I continue to get worse I will go into the ER! But, as I laid in bed today my wonderful mother was calling my GI doctor at Duke to see if he could call in another anti-nausea medicine that was in a liquid, dissolved strip, injection or any other form besides pill for me to take...still waiting to hear back from him since he was in procedures all day today! With all of this I have had a bad migraine headache I get this a lot and take two kinds of medicine for them...but you guessed it...I haven't been able to take it since I am throwing-up all the food and pills! YAY!!! FUN TIMES! :-) Last night, I got only about 3 hours of total sleep...
There is a silver lining! There is ALWAYS one! ;-) Today, like every Thursday I had my acupuncture session with Andrew Nowosad at the Acupuncture Healing Center. He was able to help tone down the nausea a wee bit as well as the pain! Also, he always helps take away my head aches! I encourage you to try to find a well trained and a great acupuncturist like I have found in Andrew. Now, acupuncture does work, however you have to be in it for the long term...you can/could see short term results although the breakthroughs are scene after you a couple months treatment or sometimes it might take shorter or longer! I have heard of a lot of people trying it and they quit after a couple treatments, due to the fact they didn't "see" the results as "fast as they wanted"; so stick with it! 
Last thing I promise...my GI wants to see me to talk about doing a colonoscopy finally and doing the procedure for the Botox injections to relax the pyloric muscle in the stomach...also about the marvelous feeding tube! So it should be a very interesting appointment on Tuesday. 

Faith. Hope. Love.
Sarah   

Tuesday, September 13, 2011

Should I or Shouldn’t I…??

     Ever since I found out about gastroparesis and that I had it…it’s been a hard thing to swallow…no pun intended there! ;-) You know how GP completely disrupts your life from even the littlest things like being able to get a cookie at the food court in the mall and not worry about having more pain and throwing it up! Or going out with your friends to a local restaurant or bar just to have fun…these are things I have not been able to do in a long time! Well, I am only able to eat on a VERY good day about 700 calories. Normal days I get about 300-400 calories! As of right now I am 114 pounds. I was 168 pounds a year ago! Which, a lot of people are saying it is great you lost all this weight...well yes, some of it, but not like this! I am amazed that I have not dropped weight faster…this might be because I have to take prednisone which makes you gain weight and I take Phenergan 25mg tabs every 6 hours. I throw-up even with that in my system! Anyways, the reason for this post is that the doctors want to put a jejunostomy feeding tube in me. The J-tube like most of you know is a tube inserted through the abdomen and into the jejunum (the second part of the small bowel) to assist with feeding and to provide me with nutrition and medicine if needed.  
      I am really not sure about getting the J-tube; because of how it looks…I know that sounds so shallow! Also, it can cause more problems like infections, pain, etc. But, it would give me the nutrition that my body really needs and I think it might help a little with energy…I just don’t know if I am at that point yet to “jump in” and get a feeding tube…I am continuously thinking about this and maybe through it might be good to share it here because I know it is a tough decision for anyone!
Here’s to Good Health!
Sarah